The Platform of Patient Organizations Congress: Challenges of healing in times of transformation, 5 and 6 October in the city of Madrid.
Improving Health, Global Patient Advocacy Dialogue meeting; Monday 25th and Tuesday 26th September at the Teva office in Amsterdam. The meeting will be hosted at Teva’s Amsterdam office which is located at Piet Heinkade 107, 1019 GM Amsterdam, The Netherlands Draft Agenda Monday 25th September 2017 10.00 – 12noon Welcome, Introductions Recap from March Mtg, Washington DC 12noon – 1pm Lunch 1.00 – 3.30pm Patient Policy: What are the issues which affect us all, across TA and geography 3.30 – 4.00pm Break 4.00 – 6.00pm Positions & Progressing the debate 6.00pm Close 7.00pm Dinner (venue to be confirmed) Tuesday 26th September 2017 9.00 – 10.30pm Updates: What is happening with CSR? Discussion with Amalia following the November meeting 10.30 – 12.00pm Update & Discussion: Social Media – Introduction to Teva’s Social Media Team 12.00 – 1.00pm Lunch 1.00 – 2.00pm talk2teva – new engagement campaign 3.00 – 5.00pm Discussion with the wider Global Patient Solutions (GPS) team about the Programs – what has happened since first being introduced to them in May 2016 5.00pm Meeting close.
Next 12th of September 2017 will take place the European Migraine Day of action. The first ever European migraine day of action took place on 2006. Various patient support representatives, and patient organization throughout Europe are working to make the day a success. People live with migraine but no one knows about it. Migraine needs to be visible and people need to be informed about how to handle migraine, and how to raise awareness among health professionals. We are going to organize a Facebook life event in London together with Women´s Health and supported by Novartis, allowing real time commenting, so viewers will have the opportunity to ask questions, which we will try to answer as part of the video. The event is due to take place at 12.30 UK time ( 13:30 CEST) at Women’s Health’s office at 33 Broadwick Street, Soho, London, W1F 9EP. We are going to talk about different topics related to migraine, specifically about work and how to get more headspace at work. We will count with an Expert, Professor Sabina Brennan, a psychologist from Trinity College Dublin, who will give her/his opinion and will discuss how to create a less stressful workplace, improve your productivity and optimise your personal workspace in order to encourage calm – and prevent migraines. It will be done via online, sharing everything on our Facebook page so that all of our members can share it in theirs and participate in it. You can get the link from Women's Health Facebook too. We will use the Hashtag #EMDA2017 on Twitter and Facebook! You can also join us by sharing everything your organization will be doing this day, using the same hashtag! There will be an online article: Simple ways to reduce stress at work Through pulling together the latest science on stress and expert opinions, this article will provide half a dozen actionable ways you can improve your [...]
Invited: Elena Ruiz de la Torre, President Paolo Rossi - Vice President Patrick Little - Treasurer Willem Sleddering - Secretary Annalisa Lentini - Board Member Audrey Craven – Past President Alison Turner (EHA Staff) Olivia Serratosa (EHA Staff)
Taking place on Wednesday 6th September 2017. The meeting will be held at Vancouver Convention Centre, prior to the 18th Congress of the International Headache Society. The Summit is an unprecedented event in the world of migraine and the inaugural summit for the IHS. They will have representation from the World Federation of Neurology (WFN), American Academy of Neurology (AAN), International Association for the Study of Pain (IASP), US Food and Drug Administration, Lifting the Burden, European Headache Federation, European Academy of Neurology, IHS global Affiliate Member Societies, and many leading migraine and headache patient advocacy groups to discuss and determine patient advocacy priorities that are both international and uniquely regional in scope.
At this meeting Elena Ruiz de la Torre will spend Apr. 45 minutes talking about EHA as an organisation, and how she sees they can work together with the Nordic countries.