Patient Solidarity Day 2017 is on December 2

start 02/12/2017 00:00 end 02/12/2017 00:00 | Events |

IAPO is organising a Patient solidarity Day the 2nd of December! If you’re taking part in a Patient Solidarity Day activity, upload your photos from activities and events to help raise awareness and inspire others and at the same time stand the chance of being next year’s feature photo. For more information go in to IAPO´s website Keep supporting the Patient Solidarity Day campaign in other ways; Sign up to the Patient Solidarity Day Thunderclap Promote Patient Solidarity Day on social media – like, share and retweet using #PSD2017 Share the campaign key messages on social media using the #PSD2017 Promote the campaign on your organization’s website by including the day on your calendar of events. Share PSD2017 poster and flier on social media and you websites using #PSD2017

EHA Rome Meeting

start 30/11/2017 10:15 end 01/12/2017 15:15 | Events |

On Thursday 30th November, one day before the EHF Congress opens,  and 1st December, EHA will create an opportunity to bring together our member organisations in Rome. The programme includes a workshop on access to treatment, an update on EHA activities and an opportunity to meet representatives from industry.  A more detailed programmes are attached.  Day 1-Agenda Rome NOVARTIS (2).doc (1) Day 2- Agenda Rome TEVA (3).doc (1)

Epis 2017

start 15/10/2017 00:00 end 17/10/2017 00:00 | Events |

Welcome to the 2nd European Patient Innovation Summit (EPIS 2017) – Realising the connection of digital technologies. Building upon the success and key learnings of the inaugural 2016 Summit, Novartis has continued to collaborate closely with a number of Europe’s leading patient organisations in order to deliver this year’s event. Using the latest digital technologies, the Summit aims to bring together patient organisations representing chronic disease communities at both a national and European level. EPIS 2017 will feature an innovative multisite format, with regional hubs in France, Germany, Italy, Norway, Portugal and Spain, and a Central Hub in Dublin, Ireland. The Summit will also be livestreamed to a number of additional countries and patient organisation representatives from across Europe. It is well-recognised that technological innovations are changing the way in which patients liaise with healthcare practitioners and manage their health. The 2017 Summit will: Review some important developments in digital technologies that are revolutionising healthcare and helping to give patients a stronger voice in healthcare decision-making Discuss ways in which the systematic resistance to accepting the value of the patient voice across the medicines lifecycle can be addressed Highlight solutions that have the greatest chance of bringing about the changes needed to give patients a stronger voice across the medicines lifecycle EPIS 2017 will comprise a mixture of forward-thinking presentations and a panel discussion livestreamed to all sites, in addition to breakout sessions located at the national hubs. It will be during these breakout sessions where you will have the opportunity to take part in the “ideathon”, working with your fellow attendees to identify solutions that facilitate meaningful patient input across the medicines lifecycle. The Summit will conclude with the most promising ideas from the ideathon being presented and a vote on the best proposal. We are confident that by working [...]

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